Systems for the collection of clinical data
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Institute of Biostatistics and Analyses: How is a registry made?

Registry creation is a rather complex process which can be divided into nine basic stages. Depending on the character of the registry, the individual stages can be more or less time-consuming; nevertheless, all stages should finally lead to the most effective solution of the registry. It is important to pay enough attention to the registry design, in order to prevent the emergence of a number of future problems to be solved.

Click on the boxes in the diagram to learn more about the individual stages of registry design.
Schéma vývoje registru. Organize a registry committee Establish goals of the registry Prepare your action plan Select the system for data collection Determine the data content Design the data collection form Collect the data Analyze the data Review the registry system
Each item of the diagram above involves complex activities which require long-term experience and professional background, if the registry is to be realized smoothly. The following chart gives an overview of main issues to be considered in each project: