Systems for the collection of clinical data
HelpDesk: phone: +420 549 498 281
e-mail:
 

Projects of the Institute of Biostatistics and Analyses at Masaryk University

The registries listed below can be sorted by various criteria. One possibility is the classification according to medical branches (click on the branch of your interest in the right column). Some registries form part of another, broader project::

  • NOP On-line registries: The NOP On-line project is an information portal of the Czech National Cancer Control Programme [www.onconet.cz]. This project involves, among others, a number of registries, which are aimed at a complex communication of data results of oncology and epidemiology research in the Czech Republic.
  • CEBO registries: CEBO (Center for Evidence Based Oncology, http://cebo.registry.cz) is an independent academic institution which aims to increase the quality and quantity of oncological clinical trials initiated by doctors and medical societies from the Czech Republic and Slovakia.
  • Cardiology registries serve as an iformation support for colection of structured clinical data in cardiology. Based on their design, they enable performing elementary assessment, comparison and complex statistical analyses upon collected data.

Clinical registry of patients with acute heart failure.

AHEAD - Acute Heart Failure Database

Clinical registry of patients with acute heart failure.

 
Clinical registry for the standardized collection of diagnostic, prognostic and treatment data in patients with acute leukaemia (AL).

ALERT - Acute LEukaemia Clinical RegisTry

Clinical registry for the standardized collection of diagnostic, prognostic and treatment data in patients with acute leukaemia (AL).

 
Clinical registry of patients suffering from wet AMD (age-related macular degeneration).

Amadeus

Clinical registry of patients suffering from wet AMD (age-related macular degeneration).

 
Non-interventional, multicentric, prospective clinical trial monitoring Aclasta® administration determined by SPC in population of women with postmenopausal osteoporosis

ATLAS

Non-interventional, multicentric, prospective clinical trial monitoring Aclasta® administration determined by SPC in population of women with postmenopausal osteoporosis

 
Multicentric system for the assessment of the progress and results of biological therapy on ankylosing spondylitis.

ATTRA - Ankylosing Spondylitis

Multicentric system for the assessment of the progress and results of biological therapy on ankylosing spondylitis.

 
Multicentric system for the assessment of the progress and results of biological therapy on psoriatic arthritis.

ATTRA - Psoriatic Arthritis

Multicentric system for the assessment of the progress and results of biological therapy on psoriatic arthritis.

 
Multicentric system for the assessment of the progress and results of biological therapy on rheumatoid arthritis and juvenile idiopathic arthritis.

ATTRA - Rheumatoid Arthritis and Juvenile Idiopathic Arthritis

Multicentric system for the assessment of the progress and results of biological therapy on rheumatoid arthritis and juvenile idiopathic arthritis.

 
Clinical registry of patients with advanced colorectal carcinoma, breast carcinoma or lung carcinoma, who have been treated with Avastin.

Avastin

Clinical registry of patients with advanced colorectal carcinoma, breast carcinoma or lung carcinoma, who have been treated with Avastin.

 
International clinical registry of patients with chronic myeloid leukaemia.

CAMELIA - Chronic MyEloid LeukaemIA

International clinical registry of patients with chronic myeloid leukaemia.

 
Project aimed at improvement in early detection of prostate carcinoma (CAPROS: CArcinoma PROstate Screening).

CAPROS

Project aimed at improvement in early detection of prostate carcinoma (CAPROS: CArcinoma PROstate Screening).

 
Collection and statistical processing of data from the Czech Cervical Cancer Screening Programme.

Cervix.cz - Cervical Cancer Screening Programme in the Czech Republic

Collection and statistical processing of data from the Czech Cervical Cancer Screening Programme.

 
This project develops an electronic library of chemotherapy regimens, which can be used for educational purposes as well as in the clinical practice.

DIOS - Dose Intensity as Oncology Standard

This project develops an electronic library of chemotherapy regimens, which can be used for educational purposes as well as in the clinical practice.

 
Clinical registry of patients with Duchenne/Becker Muscular Dystrophies (DMD/BMD).

DMD/BMD Registry

Clinical registry of patients with Duchenne/Becker Muscular Dystrophies (DMD/BMD).

 
Clinical registry monitoring the treatment effectiveness of Erbitux, a targeted biological therapy used in the treatment of colorectal cancer and locally advanced head and neck cancer.

Erbitux

Clinical registry monitoring the treatment effectiveness of Erbitux, a targeted biological therapy used in the treatment of colorectal cancer and locally advanced head and neck cancer.

 
Registry for the collection of epidemiological and clinical data on patients with gastrointestinal stromal tumours (GIST).

GIST

Registry for the collection of epidemiological and clinical data on patients with gastrointestinal stromal tumours (GIST).

 
Clinical registry of patients with head and neck tumours.

HardRock

Clinical registry of patients with head and neck tumours.

 
Clinical registry for the continuous and predictive assessment of treatment in haemophilia.

HemIS - Hemophilia: Information System

Clinical registry for the continuous and predictive assessment of treatment in haemophilia.

 
International clinical registry for the collection of haemophiliac patients' data.

HemoRec

International clinical registry for the collection of haemophiliac patients' data.

 
Clinical registry of patients with breast carcinoma, treated with Herceptin.

Herceptin

Clinical registry of patients with breast carcinoma, treated with Herceptin.

 
Project for the assessment of hormonal therapy in women with hormone-dependent breast cancer

HORIZON(F)

Project for the assessment of hormonal therapy in women with hormone-dependent breast cancer

 
Registry monitoring the results of therapy in patients with inflammatory bowel disease.

IBD - Inflammatory Bowel Disease

Registry monitoring the results of therapy in patients with inflammatory bowel disease.

 
Analysis of incidence of skeletal related events in patients with breast carcinoma.

ICARUS - Incidence of Skeletal Related Events in Breast Cancer

Analysis of incidence of skeletal related events in patients with breast carcinoma.

 
Database for monitoring, analyzing and improving the quality of health care of injured patients.

Injury Registry

Database for monitoring, analyzing and improving the quality of health care of injured patients.

 
International clinical registry of ErbB2-positive breast cancer patients

Interb

International clinical registry of ErbB2-positive breast cancer patients

 
A central registry dealing with the implantation of implantable cardioverter-defibrillators to treated patients.

KARDIO-ICD - Registry of implantable cardioverter-defibrillators - ICD

A central registry dealing with the implantation of implantable cardioverter-defibrillators to treated patients.

 
A central registry dealing with the catheter ablations.

KATAB - Registry of catheter ablations

A central registry dealing with the catheter ablations.

 
Collection and statistical processing of data from the Czech Colorectal Cancer Screening Programme.

Kolorektum.cz - Colorectal Cancer Screening Programme in the Czech Republic

Collection and statistical processing of data from the Czech Colorectal Cancer Screening Programme.

 
Collection and statistical processing of data from the Czech Breast Cancer Screening Programme.

Mamo.cz - Breast Screening Programme in the Czech Republic

Collection and statistical processing of data from the Czech Breast Cancer Screening Programme.

 
Registry for monitoring of clinical data of children with epilepsy.

MARCUS

Registry for monitoring of clinical data of children with epilepsy.

 
International clinical registry of patients with myelodysplastic syndrome.

MDS - MyeloDysplastic Syndrome

International clinical registry of patients with myelodysplastic syndrome.

 
Management of metastatic bone disease in advanced solid tumours: quality assurance and quality control in everyday clinical practice.

METODA

Management of metastatic bone disease in advanced solid tumours: quality assurance and quality control in everyday clinical practice.

 
Monitoring of processes related to patient flow among various cancer centres. e-Consultation as a modern form of communication between physicians.

NOE - e-Consultation on Cancer Patients

Monitoring of processes related to patient flow among various cancer centres. e-Consultation as a modern form of communication between physicians.

 
Information system for the assessment of cancer epidemiology in the Slovak Republic.

NOR SK: National Portal of Cancer Epidemiology in Slovakia

Information system for the assessment of cancer epidemiology in the Slovak Republic.

 
Non-interventional, multicentric, prospective clinical trial monitoring prophylactic administration of pegfilgrastim in patients treated with chemotherapeutic regimens with high risk of febrile neutropenia.

Opera

Non-interventional, multicentric, prospective clinical trial monitoring prophylactic administration of pegfilgrastim in patients treated with chemotherapeutic regimens with high risk of febrile neutropenia.

 
Clinical registry of patients with non-small cell lung carcinoma (NSCLC) or pleural mesothelioma, who have been treated with pemetrexed.

Pemetrexed

Clinical registry of patients with non-small cell lung carcinoma (NSCLC) or pleural mesothelioma, who have been treated with pemetrexed.

 
Registry of clinical data necessary for the assessment of cancer treatment quality and results in a health care facility.

PONS - Pribram ONcological System

Registry of clinical data necessary for the assessment of cancer treatment quality and results in a health care facility.

 
Nationwide project of cancer care of women with breast carcinoma under the age of 35.

Project 35

Nationwide project of cancer care of women with breast carcinoma under the age of 35.

 
Monitoring the effectiveness and safety of early treatment with rFVIIa in patients with severe bleeding.

Rapid

Monitoring the effectiveness and safety of early treatment with rFVIIa in patients with severe bleeding.

 
Clinical registry of patients with malignant neoplasm of kidney.

Renis - Renal Carcinoma Information System

Clinical registry of patients with malignant neoplasm of kidney.

 
A central registry dealing with the implantation of pacemakers to treated patients.

REPACE - Registry of pacemakers

A central registry dealing with the implantation of pacemakers to treated patients.

 

REPLY

A clinical registry for non-interventional monitoring of patients with pulmonary hypertension.

 
Clinical registry of patients suffering from sellar tumors.

RESET

Clinical registry of patients suffering from sellar tumors.

 
Multicentre, non-interventional epidemiological and explorative study of incidence of skeletal related events in patients with multiple myeloma.

RMG - Registry of Monoclonal Gammopathies

Multicentre, non-interventional epidemiological and explorative study of incidence of skeletal related events in patients with multiple myeloma.

 
International clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding using rFVIIa in children without haemophilia.

SevenBleep

International clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding using rFVIIa in children without haemophilia.

 
Clinical registry of patients with lung carcinoma or pancreatic carcinoma, who have been treated with Tarceva.

Tarceva

Clinical registry of patients with lung carcinoma or pancreatic carcinoma, who have been treated with Tarceva.

 

TAVI

Registry monitoring catheterizational implantations of aortal valves

 

TUGENDHAT

Clinical trial comparing standard AV sequential pacing versus biventricular pacing in patients with a conventional indication for permanent heart pacing (primary bradycardia indication) accompanied by documented left ventricular dysfunction.

 
Information system for monitoring and optimization of diagnosis and treatment of patients with hormone refractory prostate cancer.

UJO: Urology Joins Oncology

Information system for monitoring and optimization of diagnosis and treatment of patients with hormone refractory prostate cancer.

 
Clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding episodes.

UniSeven

Clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding episodes.

 
Clinical registry of patients with malignant neoplasm of testis.

Uranos

Clinical registry of patients with malignant neoplasm of testis.

 
Information system for the assessment of cancer epidemiology in the Czech Republic.

SVOD: Epidemiology of malignant tumours in the Czech Republic

Information system for the assessment of cancer epidemiology in the Czech Republic.