Systems for the collection of clinical data
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Projects of the Institute of Biostatistics and Analyses at Masaryk University

The registries listed below can be sorted by various criteria. One possibility is the classification according to medical branches (click on the branch of your interest in the right column). Some registries form part of another, broader project::

  • NOP On-line registries: The NOP On-line project is an information portal of the Czech National Cancer Control Programme [www.onconet.cz]. This project involves, among others, a number of registries, which are aimed at a complex communication of data results of oncology and epidemiology research in the Czech Republic.
  • CEBO registries: CEBO (Center for Evidence Based Oncology, http://cebo.registry.cz) is an independent academic institution which aims to increase the quality and quantity of oncological clinical trials initiated by doctors and medical societies from the Czech Republic and Slovakia.
  • Cardiology registries serve as an iformation support for colection of structured clinical data in cardiology. Based on their design, they enable performing elementary assessment, comparison and complex statistical analyses upon collected data.

Clinical registry for the standardized collection of diagnostic, prognostic and treatment data in patients with acute leukaemia (AL).

ALERT - Acute LEukaemia Clinical RegisTry

Clinical registry for the standardized collection of diagnostic, prognostic and treatment data in patients with acute leukaemia (AL).

 
International clinical registry of patients with chronic myeloid leukaemia.

CAMELIA - Chronic MyEloid LeukaemIA

International clinical registry of patients with chronic myeloid leukaemia.

 
Clinical registry for the continuous and predictive assessment of treatment in haemophilia.

HemIS - Hemophilia: Information System

Clinical registry for the continuous and predictive assessment of treatment in haemophilia.

 
International clinical registry for the collection of haemophiliac patients' data.

HemoRec

International clinical registry for the collection of haemophiliac patients' data.

 
International clinical registry of patients with myelodysplastic syndrome.

MDS - MyeloDysplastic Syndrome

International clinical registry of patients with myelodysplastic syndrome.

 
Monitoring the effectiveness and safety of early treatment with rFVIIa in patients with severe bleeding.

Rapid

Monitoring the effectiveness and safety of early treatment with rFVIIa in patients with severe bleeding.

 
Multicentre, non-interventional epidemiological and explorative study of incidence of skeletal related events in patients with multiple myeloma.

RMG - Registry of Monoclonal Gammopathies

Multicentre, non-interventional epidemiological and explorative study of incidence of skeletal related events in patients with multiple myeloma.

 
International clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding using rFVIIa in children without haemophilia.

SevenBleep

International clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding using rFVIIa in children without haemophilia.

 
Clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding episodes.

UniSeven

Clinical registry for monitoring and evaluation of the treatment of severe and/or life threatening bleeding episodes.