Clinical registries in general

What is a clinical registry?

A clinical registry is a collection of information about individuals, usually focused around a specific diagnosis or condition.

Why are clinical registries needed?

Clinical registries can provide health care professionals and researchers with first-hand information about individuals with these conditions, both individually and as a group. Clinical registries might be beneficial to involved patients, doctors, and researchers; the design of a specific registry is of key importance.

How is a clinical registry different from a clinical trial?

A clinical trial is a research study in which some individuals receive an experimental intervention, and are compared to other individuals with the same condition who receive the standard intervention or no intervention; the results are used to evaluate the relative effects of the interventions on health-related outcomes.

A clinical registry is a voluntary collection of information about individuals with certain diseases or conditions. All patients recorded in a clinical registry obtain the best available care as considered by their treating doctor.