Directory of registries

MDS - Clinical registry of patients with MyeloDysplastic Syndrome


start of the project: January 2009

The MDS project is an international clinical registry of patients with myelodysplastic syndrome. The registry serves for collection and assessment of epidemiological and clinical data (basic records) and, in selected groups of patients, laboratory and cytogenetic data (extended records), eventually together with data from research projects and clinical studies (specialized records) are collected. 32 specialized centres of the Czech Republic participate in the project. The project started under the guarantee of the MDS working group at the CSH; the current guarantee is the CZECH MDS GROUP – scientific board.

The CZECH MDS GROUP arose from the MDS working section at the Czech Society of Hematology as a civil society organization of medical experts dealing with diagnostics, treatment, research, and education in the field of myelodysplastic syndrome. The CZECH MDS GROUP plays an important role in improvement of haematologists' professional skills in diagnostics and health care for patients with the MDS.

Technological background: Institute of Biostatistics and Analyses, Poštovská 68/3, 602 00 Brno, Czech Republic