Overview of former clinical registries

The following list provides an overview of clinical registries that were formerly run by the Institute of Biostatistics and Analyses Ltd. An overview of current clinical registries is also available.

 Directory of registries

AHEAD

Terminated clinical registry of patients with acute heart failure.

ALN AFME

Terminated clinical registry of patients with chronic myeloid leukaemia (CML) for the Arab Leukaemia Network.

Amadeus

Terminated clinical registry of patients suffering from age-related macular degeneration (AMD) or diabetic macular oedema (DMO) who were treated with anti-VEGF medications.

ATHRO 2

Terminated survey of patient compliance and the administration of antiplatelet therapy in patients with acute coronary syndrome who have been hospitalised in PCI centres all over the Czech Republic.

CAMELIA CZ – Chronic MyEloid LeukaemIA

International clinical registry of patients with chronic myeloid leukaemia.

CAR

Terminated clinical registry of patients suffering from severe persisting allergic asthma who were treated with omalizumab (Xolair®).

CHOPIN – Chronic pain neuromodulation

Clinical registry of neuromodulation techniques applied in patients suffering from chronic pain.

CORECT

The CORECT registry is a non-interventional post-registration database focused on collection of epidemiological and clinical data of patients with colorectal carcinoma (CRC) treated with bevacizumab, cetuximab, and panitumumab. The project was initiated in July 2011 by the Czech Society for Oncology. Obtained data allow for monitoring of CRC patients' treatment and its results. Institute of Biostatistics and Analyses Ltd, a spin-off company of the Masaryk University, provides management and other services to this project.

CZECH 2

Terminated clinical registry of patients with acute coronary syndromes in the Czech Republic.

CZECH 3

Terminated cross-sectional registry of patients with acute coronary syndromes in the Czech Republic.

DAFALL – Database of Food Allergy

Terminated clinical registry of patients with food allergies.

DoIT!

Non-interventional, multicentre, retrospective and prospective study of patients with brain tumours, who have been treated in the Czech Republic according to the common clinical practice.

ERICA

Terminated multicentre, national, observational, non-interventional, prospective study of paediatric patients with an acute infection of respiratory tract who were treated with erdosteine (Erdomed®).

HARM

Multicentre, non-interventional, retrospective and prospective monitoring of patients with chronic HCV infection who have been treated with direct-acting antiviral agents (DAAs) or with standard therapy.

HemoRec

Terminated international project covering the Central European region and focusing on the collection and analysis of data on haemophiliac patients, including health care quality assessment.

Heredity

Terminated registry of patients with hereditary gynaecological cancers, including breast cancer.

Magister

Terminated registry of morphologically examined breast cancers, with particular emphasis on the collection of data regarding the examination of HER2/neu status in the Czech population.

NERO – Nausea/Emesis Registry in Oncology

Multicentric non-interventional prospective study assessing antiemetic guidelines consistency in chemotherapy-induced nausea and vomiting (CINV) prophylaxis and the impact of CINV on the quality of life on cancer patients receiving moderately emetogenic chemotherapy (MEC) or highly emetogenic chemotherapy (HEC).

NSCLC stage III

Terminated international clinical registry gathering data on the management of patients with non-small cell lung cancer (NSCLC) who had been diagnosed at the clinical stage III.

OBAAMA-CZ

Terminated clinical registry focused on the practice of anaesthesiology in obstetrics.

Paediatric Oncology

Terminated parametric collection of basic clinical data on paediatric cancer patients, interactive analytical reports.

Pemetrexed

Clinical registry of pleural mesothelioma patients who have been treated with pemetrexed (Alimta®).

PET/CT-CZ(Q)

Terminated project developing a data background for the monitoring of numbers and indications of PET/CT scans in the clinical practice of Czech health care facilities.

POPE

Terminated clinical registry of patients with chronic obstructive pulmonary disease (COPD) in Central and Eastern Europe.

PROPEL – Prospective Registry Of ParEnteraL prostanoids

Terminated registry of PAH (pulmonary arterial hypertension) patients who were treated with parenteral prostanoids.

REDNUP – registry of home nutritional support

Terminated registry of paediatric and adult patients with home-administered parenteral nutrition.

reGISTer

Terminated clinical registry that monitored the epidemiology of gastrointestinal stromal tumours (GIST) as well as therapeutic approaches and treatment results in GIST patients in the Czech Republic and Slovakia.

Rektum.cz

The portal rektum.cz is dedicated mainly to the education of health care professionals on the issue of rectal cancer, which is diagnosed as C20 under the ICD-10 classification.

RESET

Terminated clinical registry of patients suffering from sellar tumours.

Simplify

Terminated clinical registry of patients who underwent autologous stem cell transplantation and who were treated with plerixafor.

Thromboreductin

Registry of patients with essential thrombocythaemia or thrombocythaemia associated with another myeloproliferative disorder who have been treated with anagrelide (Thromboreductin®).

Tulung

Clinical registry of non-small cell lung cancer (NSCLC) patients who have been treated with bevacizumab (Avastin®), erlotinib (Tarceva®), gefitinib (Iressa®), pemetrexed (Alimta®), afatinib (Giotrif®) and/or nintedanib (Vargatef®).