start of the project: September 2019
The goal of the project is to improve diagnosis and the general availability of adequate therapy for patients with hereditary angioedema.
The primary goal of the project is the collection of epidemiological and clinical data on patients with hereditary angioedema and, in particular, the evaluation of data on the nature of treatment, the intensity of treatment and its effectiveness.
The secondary objective of the project is:
Odborný garant: doc. MUDr. Miloš Jeseňák, Ph.D., MBA
Projektový management: Institut biostatistiky a analýz, s.r.o.