MDS – MyeloDysplastic Syndrome

 Directory of registries
MDS – MyeloDysplastic Syndrome

Clinical registry of patients with myelodysplastic syndrome.

start of the project: June 2009

The MDS project is a clinical registry of patients with myelodysplastic syndrome (MyeloDysplastic Syndrome registry). The registry was established in order to collect and process basic epidemiological and clinical data (basic records). In selected groups of patients, laboratory and cytogenetics data are monitored (extended records), or data from research projects and clinical trials (specialized records). Dozens of specialized centres in the Czech Republic participate in the project. The project is run under the guarantee of the Myelodysplastic Syndrome Working Group (MDS section of the Czech Society of Haematology).

  • Expert guarantors: Anna Jonášová, M.D. (General University Hospital in Prague), Assoc. Prof. Jaroslav Čermák, M.D., Markéta Marková, M.D. (Institute of Haematology and Blood Transfusion, Prague), Ivana Hochová, M.D. (University Hospital in Motol, Prague), Libor Červinek, M.D. (University Hospital Brno)
  • Funding: Novartis Ltd., Celgene
  • Partners: dozens of haematology and cytology centres in the Czech Republic (you can find more detailed information on the website of the MDS project)
  • Brief overview of results: you can find more detailed information – mostly in Czech language – on the website of the MDS project
MDS: clinical registry of patients with myelodysplastic syndrome