Clinical registry of patients with myelodysplastic syndrome.
start of the project: June 2009
The MDS project is a clinical registry of patients with myelodysplastic syndrome (MyeloDysplastic Syndrome registry). The registry was established in order to collect and process basic epidemiological and clinical data (basic records). In selected groups of patients, laboratory and cytogenetics data are monitored (extended records), or data from research projects and clinical trials (specialized records). Dozens of specialized centres in the Czech Republic participate in the project. The project is run under the guarantee of the Myelodysplastic Syndrome Working Group (MDS section of the Czech Society of Haematology).