International clinical registry of patients with chronic myeloid leukaemia.
start of the project: January 2004
end of the project: January 2021
The CAMELIA project (Chronic MyEloid LeukaemIA) was focused on monitoring of patients with chronic myeloid leukaemia (CML) in everyday clinical practice. Its aim was to monitor all CML patients in participating haemato-oncology centres, regardless of their treatment modalities.
The project was initiated at the Institute of Biostatistics and Analyses of the Masaryk University (IBA MU) and has been continued at the Institute of Biostatistics and Analyses Ltd (IBA Ltd), a university company.
The structure of monitored data has been designed in a way which makes it possible to collect data on three levels:
Since the very beginning in 2005, the CAMELIA project has been organized as an international project: haemato-oncology centres from the Czech Republic and Slovakia are involved. The project aims to coordinate the procedures in CML treatment, taking into account international guidelines as well as possibilities of participating centres. The CAMELIA project was open for further cooperation: its background and coordination were ready to be extended for other interested parties. In 2015, the project was divided into a Czech registry comprising only hematooncology centers in the Czech Republic and operating under the original name Camelia and the Slovak registry Camelia SK, in which all hematooncology centers in Slovakia are involved.
The CAMELIA project was throughout its existence closely linked to international projects focused on the issues related to leukaemias; through the mediation of participating institutions, the project was part of the European LeukemiaNet and the EUTOS for CML project.
Other important information:
In 2019, the Camelia Registry and the Infinity Registry were merged by mutual agreement. More information on the ongoing cooperation of all hematooncological care centers in the Czech Republic can be found on the website of the Czech Leukemia Group - for Life (CELL).