Terminated clinical registry that monitored the epidemiology of gastrointestinal stromal tumours (GIST) as well as therapeutic approaches and treatment results in GIST patients in the Czech Republic and Slovakia.
start of the project: May 2006
end of the project: January 2019
A confirmed diagnosis of GIST, rather than the administration of a specific drug, was the basic criterion for a patient’s record in the registry. The registry monitored patients treated with all available treatment modalities (surgery and pharmacotherapy).
The project had been designed in cooperation with coordinators from research facilities who have had previous experience with GIST diagnosis and treatment. At the beginning, both retrospective data (patients diagnosed in the period between 2000 and 2006) and prospective data (patients diagnosed since the launch of the registry in 2006) had been entered into the registry. At later stages, only prospective records were collected.
Primary objectives of the project:
Secondary objectives of the project:
Other important information: